Eventos

Eventos

Compartir experiencias, intercambiar información y aprender constantemente

Aquí encontrará todos los eventos relacionados con la ECF en nuestro país para ayudar a pacientes y sus cuidadores, junto con los profesionales sanitarios, a dar visibilidad y realizar talleres formativos para aprender a vivir con la enfermedad.

Día Mundial de la Enfermedad de Células Falciformes

19 de junio de 2021

Barcelona

Organizado por Novartis

ES2101193598

Bibliografía del mapa de centros de referencia:

• Castiñeras DE, et al. An Pediatr (Barc). 2019;91(2):128.e1-128.e14. 
• Comunidad de Madrid. https://www.comunidad.madrid/servicios/salud/cribado-neonatal. Último acceso: mayo de 2020. 
• Generalitat Valenciana. Conselleria de Sanitat. http://publicaciones.san.gva.es/publicaciones/documentos/V.4285-2011.pdf. Último acceso: mayo 2020. 
• Gobierno Vasco. Consejo Asesor de Cribado Neonatal de Enfermedades Congénitas. https://www.euskadi.eus/contenidos/informacion/salud_infancia_talon/es_def/adjuntos/Memoria-Programa-Metabolopatias-CAPV-2018.pdf. Último acceso: mayo 2020. 
• Grupo Español de Eritropatología [Internet]. Centros de referencia. Disponible en: https://eritropatologia.com/centros-de-referencia/. Último acceso: mayo de 2020. 
• Ministerio de Sanidad. https://www.mscbs.gob.es/va/profesionales/saludPublica/prevPromocion/cribadoNeonatal.htm. Último acceso: mayo de 2020. 
• Ministerio de Sanidad, Servicios Sociales e Igualdad. https://www.saludcastillayleon.es/profesionales/es/programas-guias-clinicas/programas-salud/programa-deteccion-precoz-enfermedades-congenitas.ficheros/1110603-INFORME%20DE%20EVALUACI%C3%93N%20DEL%20PROGRAMA%20DE%20CRIBADO%20NEONATAL%20DEL%20SNS%202016%20v.%20final.pdf. Último acceso: mayo de 2020. 
• Ministerio de Sanidad, Servicios Sociales e Igualdad. https://www.mscbs.gob.es/profesionales/CentrosDeReferencia/docs/ListaCSUR.pdf. Último acceso: mayo de 2020. 
• REPHem-SEHOP. 2013. Disponible en: https://www.orpha.net/data/prj/ES/ID115050ES.pdf. Último acceso: mayo 2020. • Sociedad Española de Hematología y Oncología Pediátricas. Lista de centros de referencia en Enfermedad de Células Falciformes en España. 2020.       

 

         
 

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